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Archive for the 'support' Category

Mar 05 2009

Thursday Thankfulness

acceptance, Asperger's, autism, discipline, Girl Scout Cookies, meditation, parenting, Reiki, support, thankfulness

It’s been a long and trying week, but not so much that I can’t keep things in perspective!

Today I am thankful for:

  1. The support of other parents who recognize the importance of providing discipline and structure to their children.  It can be challenging enough to not be a doormat for your kids some days, but it is that much harder when other people are, passively or actively, thwarting your efforts.  Loving your child does not mean letting him or her run roughshod all over you, and quite frankly, it doesn’t help the kid one bit.  No one else in the real world will put up with it.
  2. I am thankful for my Reiki practice.  Although I haven’t done as much as I want to with it, I’ve suck with meditation and balancing practices.  I see a huge difference, especially in my responses to situations that in the past would have made me want to tear my hair out.  Good stuff, that Reiki!
  3. I am thankful for Girl Scout Cookies - not the selling part, but just the general yumminess of them. Isn’t everyone?  They rock!

Your thankfulness below, please, and have an awesome day!

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2 responses so far

Jan 13 2009

Adonya Wong Virtual Book Tour Itinerary

http://www.autismhangout.com/news-reports/feature-programs.asp?id2=80

I mentioned in a previous post that My Autism Insights will be hosting Adonya Wong on her Virtual Book Tour promoting her book, In My Mind, and spreading autism awareness around the blogosphere.

“She will be sharing her thoughts on living with autism, writing, getting published, and future works.  In addition to these interviews, you can read reviews of In My Mind and listen to an audio interview by Autism Hangout.”

Adonya will also be conducting a giveaway - a pretty sweet one - for commenters along the tour route.  My Autism Insights will be stop #6 on Saturday January 24, so please be sure to follow along!  Here’s the rest of the tour itinerary:

Monday, January 19

Host: Bonnie Sayers, Autism Family Adventures

Tuesday, January 20

Host: Matt Gilbert, Doctorious.org

Wednesday, January 21

Host: MaryTara Wurmser, The Bon Bon Gazette

Thursday, January 22

Host: Katrina Shanks, The Queen’s Pen

Friday, January 23

Host: Sunshine Boatright, Rawtism

Saturday, January 24

Host: Andrea S., My Autism Insights

Sunday, January 25

Host: Lori Guthrie, Rainbow Project DFW

Monday, January 26

Host: Tim Welsh, Tanner’s Dad’s Blog

Tuesday, January 27

Host: Kari Wolfe, Imperfect Clarity

Wednesday, January 28

Host: Tammy Lessick, Autism Learning Felt

Thursday, January 29

Host: Adonya Wong, Healing… Through the Eyes of Autism

Please check out all Adonya’s stops!

And a small disclaimer, while I may or may not necessarily agree with everyone’s opinions, I do fully support their right to be heard and respect their contributions to the autism discussion.  We’re all interested in the common goal of raising awareness and furthering the discussion, so each perspective is a worthwhile one.

Have a great day!

3 responses so far

Jan 12 2009

Autism and Bullying

abuse, Asperger's, autism, bullies, coping strategies, goals, IEP, mean kids, parenting, perseveration, practical strategies, problem behavior, school, social skills, special needs, stimming, support
Mary at Bon Bon Gazette and the NJ Moms Blog did a couple of posts on this on this topic that I saw last week, and then I read this comment from a reader to my weekend post:

“I also have a son with aspergers syndrome. Justin is 12 yrs old a very quiet pre-teen.  Who is a 7th grader in Jr. High. My main concern is that the kids at his school has started seeing him as an “easy target”. Justin won’t tell on these kids because he doesn’t want to get people in trouble. He is such a kind hearted boy and wouldn’t even hurt a fly. How can I get him to understand that what these kids are doing to him is very wrong and he needs to get help from an adult to put a stop to this once and for all? Please somebody help me and tell me what I should do as a parent!”

It’s disturbing that bullying is such a prevalent reality for so many students with special needs.  With most kids on the autism spectrum, they may not look any different from their peers, but they often exhibit behaviors or a lack of social savvy that makes them easy targets for bullies.  The harassment typically becomes a serious issue around middle school age and can last through high school.  A conversation with Gus’s counselor revealed that students on the autism spectrum often don’t understand that they are being mistreated; they can think the abusers are their friends and that must be the way friends act.  She mentioned a high school Aspie who would do some pretty outlandish things at the urging of other students because he didn’t realize they were mocking him.  Another child began to view the physical abuse he was receiving at school as a ‘ritual’ and it fed into his perseverative tendencies.  He would actually seek out the bullies because the abuse became his pattern until he was hurt and the school nurse intervened.  The victims will usually not speak up for themselves, and the bullying may not go unchecked until there is some severe incident or the victim’s behavior begins to change and a parent, teacher or counselor takes notice.

Schools are becoming more responsive to these incidents because the situation has gotten so bad.  Although there are federal laws (Rehabilitation Act of 1973, Americans with Disabilities Act of 1990) protecting the disabled against harassment in any educational facility that received public funding, on a practical level, it doesn’t offer much in the way of prevention.  So what can parents do to protect their children from being tormented by their peers?

Be Aware

You can’t be with your child all the time, but you can be aware of any changes in your child’s behavior or appearance.  Notice if your child is coming home dirty, with torn clothing or with bruises.  Changes in behavior may include reluctance to go to school, an increase in behaviors that indicate distress (like stimming), changes in sleeping or eating, flinching, aggression or out-of-the-ordinary withdrawal.  Also, don’t be afraid to ask questions of teachers and classroom aides to stay on top of what goes on during the school day.

Your IEP as a Tool

While you can’t directly have antibullying written into your child’s IEP, there are goals that can be written in to help reduce the risk of bullying.  Goals that specifically work to increase social skills like recognizing social cues, assertiveness, or avoiding and handling bullying can be helpful.  In addition, it may be possible to request services to prevent bullying such as staff monitoring in areas where bullying is likely to occur.  If bullying has or is occurring, counseling support should be made available.

Educate the Peers

Emily at A Life Less Ordinary has had to deal with bullying and came up with a fantastic idea to educate her son’s peers about her son so that they would have a better understanding of some of his behavior.  If Bullying Prevention programs at schools took a similar approach and educated their students about autism and other special needs, it might help reduce the ‘otherness’ of the special needs students.  See what your child’s school or district might have in place for conducting this kind of diversity training.  If nothing’s available, be proactive and try to get something started.  And remember that kids who are neither bullies nor victims can play a role in bullying prevention as well by being encouraged to take a stand against it, as noted in the Autism Asperger Publishing Company’s Winter 2006 Newsletter, which was devoted to the issue of bullying.

Who Should You Take the Issue Up With?

As much as parents want to protect their child’s well being, it is possible to make the matter worse if you address the bully directly – it can just cause the situation to escalate.  But you can’t ignore it either.  Likewise, contacting the bully’s parents might have an adverse effect.  If the incidents occur in school, start with your child’s teacher.  If that doesn’t help, try the school principal.  In severe cases, or situations where the school administration can’t control the situation to keep your child safe, remember that the law is on your side if you have to contact local authorities.  If you still don’t feel that your child is safe, home schooling may be an option to consider, at least for a while.

Other reading

Some available resources:

Preventing Bullying of Children and Youth on the Autism Spectrum

Bullying (and Asperger’s Syndrome)

Bullying Among Children and Youth with Disabilities and Special Needs

NAS: Bullying: A Guide for Parents

And The Gray Center has several books and a DVD available on the topic of bullying as well.

If you have anything to add, or if I’ve misstated something, by all means, add to the discussion of this very important topic.

8 responses so far

Dec 06 2008

Thank You!

Asperger's, autism, boy-specific issues, friends, internet, life skills, school, soccer, social skills, socialization, special needs, sports, support, thankfulness, music, singing

There were so many supportive and helpful comments to my post yesterday , I felt they deserved a post to say Thank You!!  It always amazes me that there are just so many awesome people who read and comment on my little corner of the Internet - it really boggles the mind some days.

We’ve tossed around some of your suggestions, and obviously this will be a process of trial and error as he grows and develops social skills.  We thought about Scouts, but without one of us to be at the meetings & activities with him, aside from the fact that I don’t see how Gus would even keep up, I’m not convinced that he wouldn’t bolt at the first chance, especially if the local troop is a big one. A friend suggested that maybe they’d have someone who could act as a shadow/mentor, but before I trust my son’s well being to anyone, obviously I’d have to know them extremely well.  And even then, the trust is tenuous at best.  I can’t say I’m the most forgiving person when it comes to some things.

As for sports, I think there may be a couple of indoor soccer games over the winter, but in the meantime, I’m looking into a special needs bowling league.  He might like that.  And I’m going to see if he can hang out, maybe over the holidays, with one of the boys from his class who I think doesn’t live too far.

He loves to sing, so I’m thinking maybe a voice class or chorus might be an option also.

At any rate, I will certainly take all your suggestions and input into consideration, and again, I really appreciate the great response to my question!!

Have a great Saturday night!

2 responses so far

Dec 05 2008

The Need for Friends

acceptance, Asperger's, autism, boy-specific issues, exclusion, friends, internet, life skills, social skills, socialization, special needs, support

As my daughter’s class explores questions of wants vs. needs, and we spend a laugh-filled, lovely evening with some of my husbands oldest and dearest friends, I am forced back to an issue that I often avoid thinking about.  How do I help Gus find a friend?  Are friends a want or a need, especially for a kid who prefers to be alone?

Listening to all the hilarious stories of a group of boys between the ages of 12 and…well, now, I was struck by how such simple encounters made for the longest lasting memories.  I realized just how dumb ‘tween and teen boys can be (No offense, C!  I love the stories and I’m honestly a little jealous of all the fun you all had!) but also that on a very tangible level, they need the wild release that they can only get from being around other boys their age.  The wildness seems to forge them into the men they will become.  There seem to be valuable lessons in that nuttiness.  Look at Mowgli from The Jungle Book.  He had all those adventures with Baloo, which cause Baghera endless headaches, but in the end he was able to become civilized.  He grew from those adventures.  What happens to a boy then who doesn’t have those formative, crazy-male-bonding experiences?

The trouble is mostly that he never seems all that interested in being friends with anyone.  He has, on the rare occasion, approached a boy his age, but it almost never works out and he ends up alone - happily I should add.  There are very few boys his age in the neighborhood, and they don’t have the patience for someone who can’t quite keep up or for someone who takes so much work just to have a conversation with.  I’m usually just happy they’re not mean to him when he’s around; they just sort of ignore him.  Every rainbow colored moon, they will play together if there’s an adult (my husband) facilitating a game.

If he’s happier on his own then, is it right for me to push him into situations where he has to interact with other boys his age?  Is it fair?  Is it setting him up for anxiety and heartache?  But if I don’t, he misses out on a huge part of male development, it seems.

This came up at his parent-teacher conference, and we all tried to brainstorm ways to get him into a social setting.  We thought of music classes or bowling.  Soccer, which is on hiatus now anyway, is too busy to allow for developing much of a friendship.  They run, they go home, end of story.  Bowling has possibilities, and I’ll call about a special-needs team in the area.  Music classes don’t strike me as the best social opportunity, although he does love it.  I won’t even get into the cost issue for music classes.

Should I get him involved in an online community for kids?  Maybe I can find a Pokemon kids forum or something.  A pen-pal would be better than nothing at this point.

There’s also the possibility that I don’t need to be so concerned about this and he’ll be just fine without my interference.  I don’t know - thoughts?  And my apologies if I’m rambly - that kind of day.

8 responses so far

Dec 02 2008

Another Award and More Lemonade!

acceptance, Asperger's, autism, awards, blogs, noteworthy, support

Wow - do I feel loved right now, or what?  I’ve been honored with two more awards and I am incredibly thankful for the recognition!

First, thanks to Cally the Wild Aspie at the Inde Sapien Choice Awards for thinking of me!

acceptance, Asperger's, autism, awards, blogs, noteworthy, support

Second, thanks to Barbara at Goal for the Green for the Lemonade Award! So, in keeping with the tradition, here are 10 blogs that I’ve come across that show either gratitude or a positive attitude:

Mental Health Humor

Valley of the Subconscious

Margie & Edna’s Basement

Healthy Tips for a Healthy Lifestyle

Get Anxiety Help

Sky Yoga Studio

Womensselfesteem

Maitri’s Heart

Pray for Chole

modus vivendi

Please stop by and show these bloggers some love.  And thanks again for reading and for your support!

P.S. Any thoughts on the new layout?  I’m not sure how I feel about it yet.  Feedback would be great.

11 responses so far

Nov 20 2008

Thursday Thankfulness

abuse, Asperger's, autism, blogs, diagnosis, family, news, noteworthy, school, special education, special needs, support, thankfulness

I’m feeling particularly thankful today after reading some distressing things…

First, I’m thankful to be married to a Social Worker who has a clear understanding of the DSM-IV, which is the manual of diagnostic criteria for the mental-health field.   It’s hard enough to explain what it is, let alone follow all the complicated requirements for any diagnosis.

I am thankful for not only the brief time I spent as a teache, but for the environment I taught in.  I worked with incarcerated youth, ages 12-17, and most of them were eitehr functunally illiterate or had learning disabilities.  It made the job challenging, but it also taught me how to teach outside the box.  As I struggle to advocate for Gus, it really comes in handy being able to understand the different challenges facing the teacher, and it is useful to be able to come up with little tricks to help him and those who are working with him.

Finally, and this is the really important one, I am thankful that I am fortunate enough to have both my children living with me, safe and sound.  Niksmom posted about Frankie Macias, who has been institutionalized since 1994 - on a temporary placement.  Frankie has suffered horrible abuses, has been denied access to his family, and even though a community-based placement has finally been obtained for him, the Department for Developmental Disabilitiesin New Jersey has refused to release him!

So, please sign the petition asking Governor Corzine to have Franie released so that he might have a chance at healing and living his life.

Have a great night, and please share your gratitude in a comment.

No responses yet

Nov 19 2008

The Lemonade Award

acceptance, Asperger's, autism, awards, blogs, internet, noteworthy, socialization, special needs, support, thankfulness

Janet at Dolly’s Daily Diary was kind enough to nominate me for the Lemonade Award which is given to bloggers who have shown a positive attitude and/or gratitude.  So, thanks to Janet for the honor!

The rules:

Put the logo on your blog or post.
• Nominate at least 10 blogs which show great Attitude and/or Gratitude!
• Be sure to link to your nominees within your post.
• Let them know that they have received this award by commenting on their blog.
• Share the love and link to this post and to the person from whom you received your award.

So here are some of my favorite blogs that inspire me to stay as positive as they do:

Marla Baltes on All That is Dazilous

A Life Less Ordinary

Mother of Shrek

Whitterer on Autism

Bon Bon Gazette

Memoirs of a Chaotic Mommy

Live Life 365

Mayhem Arts

On the Verge

Pregnant with Cancer

Drop by and check out these wonderful blogs!

Also, just a note to those of you who have taken the time to comment, I do read an appreciate every comment left, even if I don’t always respond.  So, thank you very much!  Have a great night!

9 responses so far

Nov 12 2008

Reframing the Questions

acceptance, ADHD, Asperger's, autism, creative kids, doctors, homework, learning, life skills, misunderstnading, neurodiversity, parenting, perseveration, practical strategies, problem behavior, reframing, school, special education, special needs, strength-based approach, support Vitus Bering - the real discoverer of Alaska

A day off from school can be a very enlightening thing.  Gus was home yesterday, and although I always do homework with him after school, it was a different experience doing it earlier in the day.  He absolutely did not want to do the work when I wanted him to and there was a good deal of acting out: rolling on the floor, loud talking, purposely filling in incorrect answers…I was frustrated, he was annoyed - actually this sounds like a typical day, except for what happened next.

Gus was (has been for several days) fixating on geography: who discovered ____; what’s the capital of ___, that sort of thing.  So, instead of doing his reading assignment or his math problems, he was going on about that.  Finally, as he was rolling around on the floor asking about who discovered Alaska, I said, “Well, I think Admiral Perry started out with 3 ships and then 5 more ships followed along.  How many ships got to Alaska?”  Booyah!  Instant transformation!  We got through a sheet of 3 digit addition, 3 digit subtraction, the stupid reading assignment about how to meet a dog (he hates dogs) and then he asked for, DEMANDED, a third math sheet.  He did not want to stop working.  Amazing how such a small shift completely commanded his attention.  Each problem became a made up story about some exploration to some country.  By the way, I stink at geography and I was spouting more crap than a newborn, but he didn’t care - I was working with him on his terms and he loved it!

So this begs the question, “Why can’t his teachers do the same thing?”  First of all, why is what they want to teach more important, more significant than what he wants to learn?  Does he really need to know the proper way to greet a dog?  It’s totally irrelevant to him - he’d be running in the opposite direction.  However, Admiral Perry having to fight off a team of sled dogs because he approached them the wrong way is pretty darned entertaining.

I looked back at some of his assignments, and aside from their irrelevance to his life except for the fact that they were readings about animals and he likes animals (I like chocolate chip cookies, but too many and I will still get sick to my stomach), there was no context.  For example: there was a booklet of geometry questions.  Across the top, he had written, “NOOOOOOOOOOOO!!!”  That was a hint right there that he wasn’t interested in the assignment.  But I wonder, if the teacher had sat him down and said, “Pikachu is battling Paul’s Electabuzz and the only way to make his volt tackle work is if he can bounce off a tree at a right angle.  Find the right angles.”  I bet he would have found them all in a matter of seconds.

I’ve been told on a regular basis that my son can’t or won’t focus.  He’s not the problem here, I’m starting to think.  He can focus just fine - on the things that interest him.  Is it his job to shift his interest to what the educational system thinks is relevant and important, or is it their job to present the information to him in a way that will engage him?  I won’t even dignify that with an answer.

The point is that we have to stop laying blame against people who are just being who they are, and as caregivers (parents, teachers, administrators, therapists, physicians) we need to get over ourselves.  What we think is significant ain’t necessarily so.  If we are going to have any hope of helping individuals on the autism spectrum, or with ADHD, or any kids for that matter, we need to start allowing for some creativity and flexibility in thinking.  We’ve got to think out of the box a little and stop being so draconian - let’s at least meet them halfway.  Can it really be that hard?  I somehow don’t think it is.

P.S. Rear admiral Robert PEARY discovered the North Pole(this is disputed); Vitus Bering discovered Alaska; Henry Hudson did discover Manhattan, but Peter Stuyvesant did not discover New Jersey.  Pikachu did in fact kick Electabuzz’s butt.  Fat lot of good that traditional education did me.  I’m sure Gus will figure out the truth about all these guys, I doubt I’ve done irreparable harm.

2 responses so far

Oct 24 2008

Sarah Palin’s Special Needs Policy

special needs, ADHD, special needs funding, politics, autism, Asperger's, election, news, special education, support, inclusion, IDEA, school, internet, Sarah Palin, blogs

Or lack of policy, more accurately.

Governor Palin gave a speech in Pittsburgh today.  I’m scouring the Internet, but so far have been unable to find video of the speech, but I have found some information , including a transcript of the speech. After reading it, I still don’t see anything new or particularly substantial about her plans, and I find some of her words contradictory to her past actions.

She did mention fully funding IDEA - great, only 11 days before the election and about a year after Senator Obama mentioned his intention to do so.  She talks about school choice for students with special needs, but some states already provide at least some level of choice.  Expanding that would certainly be a nice idea, but with the spending freeze that Senator McCain called for during the debates, where is the funding coming from?  Governor Palin claims that by reallocating funds already in the budget it can be done, but she neglects to give concrete information as to how.

In a Chicago Tribune article, quoted at Autismvox , her plans apparently include boosting early childhood funding until age 3, but what is supposed to happen to those children after age 3?

A couple of other issues are distressing.  First, she claimed that the special education budget in Alaska would have been tripled by 2011, but a big chunk of that funding increase is for a program called the Alaska Youth Challenge Academy, a boot camp for dropouts with behavioral issues.  Autism, Down’s Syndrome, Cerebral Palsy, ADHD…none of these, nor a host of other special needs, are ‘behavioral issues,’ so where is the funding for those students who wouldn’t be served by being in a boot camp?  When given the opportunity to advocate for individuals with special needs in Colorado, she opposed an amendment that would raise funds for those waiting for services - about 12000 people.

Governor Palin got in a dig at the Obama campaign, and her digs have been nothing but misrepresentations and double standards up to this point, by saying that his tax plan would tax trusts that parents establish for their special needs children, which is inaccurate.  As one commenter on the CBS News blog said:

“Sure, any special needs individual who is lucky enough to have a NET EARNING of $250000 per year in INTEREST FROM TRUST FUND will be affected a bit. We are talking about trust funds well above $5.000000 here. How many kids will be affected, I wonder? I”d love to see statistics on that.


Posted by odnarusalka”Governor Palin fails to mention that the McCain-Palin health plan would allow insurers to deny coverage to those with pre-existing conditions.  Finally, Governor Palin spoke about the fact that children with disabilites grow up and that there needs to be support for them as adults as well.  Yet, she has yet to act on Maria Shriver’s call to Governors to employ disabled adults, and John McCain opposed the Community Choice Act, as mentioned in Becky Blitch’s blog.  So once again, the sound bites sound interesting but there doesn’t seem like there is much in the way of specifics, action, accuracy or truth where the Governor is concerned.  If this was her Hail Mary play, she seems to have just missed the goal.

3 responses so far

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