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Archive for the 'healtcare' Category

Dec 30 2008

Manic Monday on Tuesday: Tradition

ailments, Asperger's, autism, doctors, healthcare, Manic Monday, Memes, sensory integration disorder Prompt by Mo at Manic Monday

Got home too late to write a post yesterday, unfortunately, but I wanted to post anyway about the apparent tradition in the healthcare field to dismiss or discount what a patient is feeling (or conversely, not feeling). It has always amazed me that so many professionals can tell a patient that there’s nothing wrong because they don’t see what the textbook says they should; it’s easier to say the patient is imagining things.  “That’s not pain you’re feeling; it’s pressure.”  That’s my favorite line.  But, for someone with sensory processing issues, they may feel things differently than the average person.  Pressure, vibration, sound…those things may all equate to pain.

My visit to the dentist yesterday was one example of this tradition in action.  I went in to have a tiny cavity filled - should have been a very quick and fairly painless thing, and mostly it was.  I told the dentist that my mouth is very sensitive - I’ve lived with it all my life, I think I should know by now what I can and cannot tolerate, right?

I dealt with the injection, but apparently Dr. Dentist decided that he didn’t need to wait for me to get numb and started drilling away.  Of course I felt everything.  Then he figured he could wait another ten seconds.  I was more numb, but here’s the thing - it wasn’t just the physical sensation that was hurting me.  The sound of the drill felt like a rusty train spike going through my head.  It very nearly brought me to tears each time he used the small drill.  I wasn’t annoyed with the dentist at first.  He really had no way of knowing.

But once he was done, I gave a small apology for all the ‘jumpiness’ and tried to explain that even after my tooth went numb, the sound of the drill was still painful to me.  “I think you’re more sensitive than your teeth are.”  His tone was dismissive, derisive.  I did not appreciate it.

There really needs to be a nationwide training program for healthcare providers about things like sensory differences and the autism spectrum.  It would hopefully serve to make those providers who like to sneer at the silliness of their patients a little more compassionate.  Needless to say, Gus, who can’t tolerate the electric toothbrush, won’t be going to that dentist anytime ever.

P.S.  This is not to imply that I have ever been diagnosed with a sensory integration disorder, simply that I have enough sensitivities to things that have been discounted by healthcare professionals that I can empathize.

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Dec 23 2008

Gus Makes a Friend, Blog Award, and Autism Health Twitter Day #HHS

Asperger's, autism, awards, blogs, friends, healthcare, noteworthy, socialization, Twitter

A few things to post about today!  We went to DH’s office party yesterday and one of the staff brought his kids: two boys aged 5 and 2.  I was amazed at how well they ALL played together.  Usually, MM is the one to make friends immediately and to dominate any new children’s attention.  I expected that to be the case since the older boy was her age.  So imagine my shock when I saw that Gus was playing with J with all DH’s action figures!

One thing I’ve noticed before is that Gus can get along, and will actually take an interest in other children, just not his peers.  A two year age gap seems to work very well for him, and he loves babies.   It was nice to see.

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On another note, Barbara at Goal for the Green had honored me with the I Love Your Blog award, and I’m finally passing it along.  (I’m starting to run out of blogs!)  I don’t remember exactly what the rules are, but I’m passing the award along to:

Lainie Sips - This is a tea blog that I’ve really grown to love!   I am by no means a tea aficionado, but I do drink tea almost to the exclusion of everything else.  Lainie has really peaked my interest in different teas with her reviews.

loveblogaward.jpg

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Finally, Tanner’s Dad has organized Autism Healthcare Twitter Day taking place all day today.  President Elect Obama is looking for input from the autism community for healthcare needs.  So if you’re on Twitter, use the hashtag #HHS and please lend your support and input!

I had also received this about a week ago:

“Early next week, the Autistic Self-Advocacy Network (ASAN) has been invited to give input to the Office of the President-elect at two meetings relating to disability policy in the upcoming administration. The first meeting will focus on autism policy issues specifically while the second will focus on health care policy from the disability perspective. The meetings will be small, intimate and include representatives from several other autism and/or disability organizations as well.

I’d like to take this opportunity to invite people to give their thoughts as to what issues matter to them in relation to Autism Policy and Health Care Policy in the upcoming administration. We’ve been asked to take 2-3 policy priorities into the first meeting and will want to represent some of the specific needs of autistic self-advocates in the second. As an organization that seeks to represent the needs of the community of autistic people and to fight for the rights of ourselves, our families and our supporters, we want to hear from you. Please feel free to either reply directly here or by e-mail to me at aneeman@autisticadvocacy.org . I’m looking forward to hearing from you and please distribute.

Regards,
Ari Ne’eman
President
The Autistic Self Advocacy Network
1660 L Street, NW, Suite 700
Washington, DC  20036
http://www.autisticadvocacy.org
732.763.5530″

Even if you aren’t on Twitter, you can make your voice heard.

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